Nov 29

PRIDE Study: YOU Can Aid LGBTQ Health Research

Join the first longitudinal health study of LGBTQ people today. The Pride Study

…And contribute to research that will hopefully “do for lesbian, gay, bisexual, transgender and queer (LGBTQ) health, what the Framingham study did for heart health,” states UC San Francisco, the site of this landmark study (UCSF News).

After all, how can LGBTQ health and mental health needs get adequately addressed when there’s been a dearth of specific knowledge about our needs? PRIDE in the Pride Study, by the way, stands for The Population Research in Identity and Disparities for Equality.

Mitchell Lunn, MD, and Juno Obedin-Maliver, MD, MPH, “founded the PRIDE Study to engage the LGBTQ community, understand their health priorities, and frame research questions to address specific disease risks, outcomes, and resiliencies in this population.”

The PRIDE study is affiliated with PRIDEnet, a national network of over 40 LGBTQ-focused organizations. According to their site, “We are a patient powered research network (PPRN) funded by PCORI and staffed by Carolyn Hunt and Micah Lubensky.” PCORI stands for Patient-Centered Outcomes Research Institute.

See a brief video below that features a variety of individuals explaining the importance to them of the PRIDE study:

One research participant is physician Daniel Summers, Slate, who in his recent article mentioned mental health issues as an element of the PRIDE study:

The wide range of questions asked by the survey could help health providers detect and lessen problems or risk factors they may have overlooked previously. To pick one area of inquiry that stood out to me when I completed the survey, it may be that growing up in a religious community that rejected gay and sexual-minority people is a significant risk factor for depression or anxiety in LGBTQ people—but joining an affirming religious community mitigates this risk later in life. By collecting very granular data points like those, the authors can provide physicians and counselors with a better idea about areas of their patients’ lives that might never have occurred to them before.

Also now a proud participant, one of thousands, is yours truly. I found the questionnaire informative, thorough, wide-ranging, and highly sensitive to all sexual minorities.

Although many have already joined the study, tons more are needed, say the researchers. That’s where you come in.

Get on your computer or any internet-connected device now and at this link answer just a few questions to see if you’re eligible. For starters, are you LGBTQ-identified and over 18?

If you are able to proceed with this confidential study, you’ll need at least a half hour, probably more, to complete the extensive questionnaire—a worthy chunk of your time and effort on behalf of LGBTQ people everywhere, don’t you think?