Mar 06

“It’s OK That You’re Not OK”: Megan Devine

Therapist Megan Devine, author of It’s OK That You’re Not OK: Meeting Grief and Loss in a Culture That Doesn’t Understand (2017), offers on her Refuge in Grief  website: “If your life has exploded into a million little bits, you don’t need platitudes. You don’t need cheerleading. You don’t need to be told this all happened for a reason. You certainly don’t need to be told that you needed your pain in order to learn something about life.”

What do you need instead (besides her book)? Perhaps her website—Refuge in Grief: Grief Support That Doesn’t Suck. The site has great info, including posts onhelping a grieving friend and surviving your own grief.

Devine lost her male partner to an accidental drowning when he was 39. Contrary to what our culture sometimes demands, she notes, “Grief no more needs a solution than love needs a solution.” Also, “Some things cannot be fixed. They can only be carried.”

Other selected quotes about grief from It’s OK that You’re Not OK:

The reality of grief is far different from what others see from the outside. There is pain in this world that you can’t be cheered out of. You don’t need solutions. You don’t need to move on from your grief. You need someone to see your grief, to acknowledge it. You need someone to hold your hands while you stand there in blinking horror, staring at the hole that was your life. Some things cannot be fixed. They can only be carried.

There is not a reason for everything. Not every loss can be transformed into something useful. Things happen that do not have a silver lining.

When you try to take someone’s pain away from them, you don’t make it better. You just tell them it’s not OK to talk about their pain.

Acknowledgment–being seen and heard and witnessed inside the truth about one’s own life–is the only real medicine of grief.

If you can’t tell your story to another human, find another way: journal, paint, make your grief into a graphic novel with a very dark storyline. Or go out to the woods and tell the trees. It is an immense relief to be able to tell your story without someone trying to fix it. The trees will not ask, “How are you really?” and the wind doesn’t care if you cry.

When someone you love dies, you don’t just lose them in the present or in the past. You lose the future you should have had, and might have had, with them. They are missing from all the life that was to be.

True comfort in grief is in acknowledging the pain, not in trying to make it go away. Companionship, not correction, is the way forward.

Mar 01

“Modern Loss” and How to Cope

People often bemoan the lack of manuals for the hard and complicated stuff like grief. Well, The Modern Loss Handbook: An Interactive Guide to Moving Through Grief and Building Your Resilience (2022) by Rebecca Soffer might convince those who’ve experienced loss there actually is a guidebook, one that’s been highly praised as useful, candid, humorous, and real.

For starters, check out the comprehensive Modern Loss website. Headings include Types of Loss, Hot Topics, and Advice.

Prior to the handbook we also had Modern Loss: Candid Conversation About Grief. Beginners Welcome (2018) by Soffer and Gabrielle BirknerIn addition to contributions from themselves, the authors provide pieces from 40 others.

Important info about Sofer and Birkner (Shondaland): “Both women lost their parents when they were young adults: Birkner’s father and stepmother were murdered when she was 24; Soffer’s mother and father died four years apart when she was in her early 30s. The two women, both writers, found space for their grief, rage, and confusion in a weekly gathering of other young women who’d lost their parents (aptly named ‘Women with Dead Parents’). Six years after their first meeting, Soffer and Birkner took that community worldwide with their online publication Modern Loss, allowing even more people to share their stories and find help in navigating what it’s like to be the one left behind after a death.”

Birkner had received (per her Shondaland interview) paradoxical pieces of advice regarding her own healing. Both turned out to be helpful to her process.

One was: Don’t expect too much from yourself. My friend told me, ‘Get up, brush your teeth, and be proud of yourself for doing it. Everything else is icing: bills, laundry, writing, whatever. Icing.’ And my grandmother, who’s my father’s mother, who had just lost her son, said to me, ‘You don’t have to expect too little of yourself.’ My friend gave me permission to be kind to myself, to pace myself, to assess where I am, to breathe, to be proud of getting up every morning. My grandma gave me permission to forge ahead in spite of everything, to keep my foot on the pedal at work and to forge ahead in my career.

An essential New York Times article by the authors offers a modern glossary reflecting the idea that “Loss is messy, melancholic and often darkly hilarious. It also lingers forever.”

Finally, some pithy quotes from Modern Loss: Candid Conversations:

Everyone will lose somebody they love. And I don’t say that as a threat, I say it as a fact.

Our grief can’t just be buried alongside the ones we love. Even years after our losses, we still have moments of gut-wrenching sadness.

Grief alters us, body and mind, by splitting us in two. It is the only way to live with it and not be destroyed by it.

Mar 16

Assisted Dying: Amy Bloom’s “In Love”

Heller McAlpin, NPR, asks potential readers of the new book by writer/psychotherapist Amy Bloom, In Love: A Memoir of Love and Loss, “Would you agree to help your beloved end his life when he receives a hopeless diagnosis?” The issue of assisted dying is what Bloom faced in her own marriage.

The diagnosis in question is early-onset Alzheimer‘s, which struck Brian Ameche in his mid-60’s.

Not everyone will agree with Brian’s decision, or with Bloom’s agreement to support his wishes. Bloom understands that euthanasia is a controversial subject, and she addresses it with the gravitas it deserves. At various points, she worries ‘that a better wife, certainly a different wife, would have said no, would have insisted on keeping her husband in this world until his body gave out.’ In Brian’s sharper moments, she worries that they’re acting too soon. She also, rightly, rails at a system that allows animals to be put out of their misery, but not human beings.

The bumpy road to assisted dying, or in this case legally “accompanied suicide” (involving drinking sodium pentobarbital) brings the couple to an organization in Switzerland called Dignatas. But you can’t just access Dignatas because you want to. One of the stumbling blocks was proving Brian’s level of “discernment and determination”:

The couple know that if they wait too long, he will no longer be capable of passing this test. They hit an upsetting delay when they learn that Brian’s neurologist had written on the MRI report that the reason for the test was a ‘major depressive episode.’ Depression is a deal-breaker for Dignitas, which does not want to be in the business of helping clinically depressed people commit suicide. Brian and Bloom have to prove that the neurologist’s note is simply not true.

Simon Van Booy, Washington Post, believes In Love demonstrates that “perhaps the two most challenging issues for Bloom as a wife” are finding alternatives to Dignatas if rejected and deciding how to tell loved ones.

While the latter, i.e., telling others, produces “some unusual reactions,” the former involves pondering various other methods of assisted dying: “The author recounts how she considered drowning, procuring fentanyl from a drug dealer, DIY suffocation, and VSED (voluntary suspension of eating and drinking), which in the case of her husband (a former Yale football player) could take as long as a month…”

In Love is currently on many critics’ must-read lists. The following review excerpt from Publishers Weekly echoes the sentiments of many, including my own: “With passion and sharp wit, [Amy Bloom] jumps back and forth between the beginning of their relationship, the Herculean effort it took to secure an agreement with Dignitas, and the painful anticipation of the final trip to Switzerland. Most poignant are the intimate moments they share as they make the most of their last days together. As she writes, ‘I imagine that Brian feels as alone as I do but I can tell he isn’t as afraid.’ The result is a stunning portrayal of how love can reveal itself in life’s most difficult moments.”

Feb 02

Ambiguous Loss, Lack of Closure: Pauline Boss

Pauline Boss coined the term “ambiguous loss” and invented a new field within psychology to name the reality that every loss does not hold a promise of anything like resolution. Amid this pandemic, there are so many losses — from deaths that could not be mourned, to the very structure of our days, to a sudden crash of what felt like solid careers and plans and dreams…Krista Tippett, Onbeing.org

Ambiguous loss is a concept coined by (now retired) therapist Pauline Boss decades ago when she was a graduate student. Her book Ambiguous Loss: Learning to Live with Unresolved Grief was a solid introduction. Her newest, The Myth of Closure: Ambiguous Loss in a Time of Pandemic and Change, was just released in December.

What is closure all about anyway? As Graison Dangor reports (NPR), “People may long for closure, which psychologists define as the act or sense of completing or resolving a problem we’re suffering from… In fact, [Boss] argues, not feeling closure is actually healthy as we seek to move forward with life.”

Selected Quotes from Boss’s NPR Interview

Ambiguous loss is a situation that’s beyond human expectation. We know about death: It hurts, but we’re accustomed to loved ones dying and having a funeral and the rituals. With ambiguous loss, there are no rituals; there are no customs. Society doesn’t even acknowledge it. So the people who experience it are very isolated and alone, which makes it worse.

Many people in this world have been forced to live with it: families with missing loved ones such as soldiers missing in action or children kidnapped, as well as people with loved ones who have dementia. What I’ve learned over the years is that most of them continue living a relatively good life with the ambiguity of loss. They do that by holding two opposing ideas in their mind at the same time: My loved one is here and also gone. That way of thinking shakes us loose from thinking with certainty, you know: “You’re either dead or alive.” Well, sometimes we don’t know.

You can’t continue to hope that we’re going to go back to how our society was before the pandemic. Changes have already taken place. And they won’t go back once it’s over. You should move forward with something new to hope for.

Selected Quotes from Boss’s Books (Goodreads):

Ambiguous loss makes us feel incompetent. It erodes our sense of mastery and destroys our belief in the world as a fair, orderly, and manageable place.

To regain a sense of mastery when there is ambiguity about a loved one’s absence or presence, we must give up trying to find the perfect solution. We must redefine our relationship to the missing person. Most important, we must realize that the confusion we are experiencing is attributable to the ambiguity rather than something we did – or neglected to do. Once we know the source of our helplessness, we are free to begin the coping process. We assess the situation, begin revising our perceptions…We feel more in charge even though the ambiguity persists.

Mixed emotions are compounded when a separation involves the potential of irretrievable loss. When there is a chance that we will never see a loved one again, we protect ourselves from the prospect of losing that person by becoming ambivalent– holding our spouse at arm’s length, picking a fight with a parent, or shutting a sibling out even while he or she is still physically present. Anticipating a loss, we both cling to our loved ones and push them away. We will resist their leaving and at the same time want to be finished with the goodbye.

Dec 01

“Permission to Grieve” Your Own Way

Permission to Grieve: Creating Grace, Space, & Room to Breathe in the Aftermath of Loss (2019) by Shelby Forsythia, Certified Grief Recovery Specialist, preceded last year’s Your Grief, Your Way: A Year of Practical Guidance and Comfort After Loss by the same author. (These are two of many notable books on grief.)

I. Permission to Grieve

“Drawing on her experience as a grieving person and two years’ worth of interviews with grief experts like Megan Devine, Kerry Egan, and Caleb Wilde, Shelby Forsythia makes the case for radical, self-honoring permission—free from personal judgement and society’s restrictive timelines and rules” (from the publisher).

Selected Quotes

The solution to grief is not a pain-free existence. It is allowing ourselves to grieve and witnessing ourselves in that process. Permission and presence are the remedies for agony and isolation.

When we grant ourselves permission to grieve, we make the experience of grief something we recognize, something we welcome into our lives. We allow it to show up the way it wants to through feelings, identities, and actions. We write our own expectations and stories. Our grief becomes ours again and we become more ourselves again because we actively choose to experience grief.

Grief looks, feels, and shows up differently to each person. Just like no two losses are alike, no two griefs are alike, either. You cannot know the full depth of another person’s experience and they cannot know the full depth of yours.

II. Your Grief, Your Way

Every day of the year has its own page. A reader can take it day by day or can skip around. Some examples of tips and style that Goodreads reviewers appreciated:

I think my favorite suggestion was to add a phrase to everything I do when I feel I’m not doing enough. Just add – ‘while grieving’ to whatever you’re doing. It makes a difference and helps one realize we’re doing the best we can.

I loved the exercise where you are asked to take 5 random words and take them to describe the person.

It doesn’t preach at me, allowing my own worldview to remain at the center where I prefer it. It doesn’t tell me how to grieve, or why I should or shouldn’t feel a certain way, or anything else inappropriate. It simply sits with me and gives me permission to think, or to feel, or to cry, or to laugh, or to wonder, or to ache. It is brief and accessible, moving and graceful, without being terse and inadequate.

Selected Quotes from Your Grief, Your Way

With a loved one’s death, we step into a liminal space – we’ve stopped living our old life, but we’ve not yet stepped into our new one.

Grief is less like a predictable sequence and more like an amorphous blob of uncertainty. You can’t forecast your way out of grief, because there’s no way to determine when the next wave is coming. This may seem disheartening at first, but when you recognize that there is no structure for grief, you can stop trying to pinpoint exactly where you are on your journey. If there’s no road map, it’s impossible to be lost.

There is so much more to grief than just death. In losing someone, you lose their presence in every single moment and milestone that appears after their death. Every hope, dream, and expectation you had for the future must now be reworked, because the person you love can no longer be there. It’s normal to feel like you’re grieving multiple losses when someone dies.